The European Institute for Innovation through Health Data (i~HD, www.i-hd.eu) is a neutral, not-for-profit organisation that facilitates the optimal and trustworthy uses of health data to improve health care and accelerate research. We bring the multiple health data stakeholder groups together in our neutral forum, so that they can learn from each other, share challenges, and work with us and with our network of European experts to develop solutions that can maximise multi-stakeholder value obtained from health data.
i~HD is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection.
It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, including GDPR compliance. It assesses and certifies clinical research platforms and federated data platforms, especially from a data protection and security perspective. It assesses the quality of health data, and supports healthcare organisations and research programmes with data quality improvement strategies. It develops and promoting adoption of codes of practice relating to data sharing and data reuse. Its team has expertise in sustainability and business modelling, and in multi-stakeholder consensus building.
i~HD benefits from core scientific and management staff who bring significant experience leading or being a partner in almost 100 EC projects including Horizon programmes, IMI and EIT Health.